• Our Mission

    Our Mission

    Our mission at PCD Smiles is to bring smiles to hospitalized primary ciliary dyskinesia, no mater their age; through the gift of a cheer package. Currently serving only The United States and Canada.
  • Request Cheer Package

    Request Cheer Package

    Know of a hospitalized primary ciliary dyskinesia patient? Please visit our “Request a Cheer Package” link and fill out our secured form to submit them for a cheer package today!
  • Donations

    Donations

    Our cheer package program runs on donations. To see how you can help PCD Smiles, visit our donations section today!
  • The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD & support the PCD Smiles cheer package program. Visit our exhibits today!

Today’s featured artist is Azaylea Ramirez with her submission titled “All Hail the Caticorn”.

“To date, there is not a single evidence-based therapeutic intervention for PCD. International efforts are underway to address this situation, but until we have good evidence, we rely on the strong expert consensus of experienced clinicians and researchers to determine the most reasonable therapeutic approaches.

In 2015, the PCD Foundation, in collaboration with the North American PCD research group, published a North American PCD Consensus Statement in Pediatric Pulmonology.  This document represents current best practices as defined by the North American Genetic Disorders of Mucociliary Clearance [Research] Consortium and by the PCD Foundation Clinical and Research Centers Network (PCDF-CRCN).” ~ American PCD Foundation

The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD or primary ciliary dyskinesia and support the PCD Smiles program. Each artist who submitted art work to the project either has PCD or has a PCD family member.

The PCD Artist Project’s 2021 exhibition merchandise ranges from apparel, giftware, home furnishings, and printed products such as posters, prints, wall art, and other items, all created from our exhibition; which can be viewed on PCD Smiles’s website. It is our hope that you support the PCD Smiles program by purchasing exhibition merchandise today.

***All proceeds from the PCD Artist Project go to support PCD Smiles!!!

Visit our shop today for your exhibition merchandise and more.

https://www.smileecove.com/stores/cove

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist; https://www.amazon.com/hz/wishlist/ls/KNO9BAJR74I4?ref_=wl_share

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies at; http://www.pcdsmiles.com/support-pcdsmiles/donations2

- To sponsor a PCD Smiles Cheer-box today!

https://store.pcdstyle.com/21-donations

- To shop for your “Official” turtle care ribbon gear today!

www.pcdstyle.com

or

https://www.smileecove.com/stores/cove

Thank you for your consideration!

#PCDsmiles  #PCDstyle  #PCDsmilesCookbook  #PrimaryCiliaryDyskinesia  #SmileEcove  #TurtleTalk  #TurtleTalkCafe  #PCD

#PCDawareness to help find a #cure4PCD!

  • Hits: 2640
Random Fact Friday 2024.138

Random Fact Friday 2024.138

Primary ciliary dyskinesia (PCD) is a congenital motile ciliopathy, associated with chronic...
Random Fact Friday 2024.131

Random Fact Friday 2024.131

Did you know that olfactory dysfunction is common in chronic rhinosinusitis (CRS); indeed, it is...
Random Fact Friday 2024.123

Random Fact Friday 2024.123

Did you know that this study found that patients...
Things Not to Say to a Person with PCD or their Caregivers

Things Not to Say to a Person with PCD or their Caregivers

For Rare Disease Day 2018 we asked the PCD (Primary Ciliary Dyskinesia) community, “What are your...