Disordered sleeping and sleep disturbances are more common in PCD than once thought. It’s not surprising given that you need to be able to breathe properly in order to sleep properly.

There are no studies into holistic lifestyle alongside a primary ciliary dyskinesia (PCD) diagnosis. There are however a few antidotal reports from the PCD patient population where patients have self reported following a holistic lifestyle and seeing great benefits. What these great benefits are remains to be seen. Primary ciliary dyskinesia is a genetic level defect of the motile cilia throughout the body. One of the biggest effects to the body when you have malfunctioning cilia is delayed airway clearance as the body’s mucociliary escalator is compromised. Having a messed up mucociliary escalator means that airway clearance of debris and bacteria is delayed up to seven days compared to a healthy counterparts airway clearance time of up to twenty four hours.

We are a little less than two weeks away from another PCD Awareness Month. I’m just not feeling it this year. It seems to get a little more difficult each year, and I am not sure why it gets more difficult. Maybe it’s I’m getting older and older and my PCD progression marches on with time. Maybe it’s I feel no one is listening and no one actually cares. Honestly it’s probably just vid fatigue. Everyone is tired of hearing about medical issues. You got what a you got so get on with life, is pretty much how I’d sum up everyone’s attitudes. It’s no secret that 2022 has been a hard year for me. All things considered, and all things laid bare I’m ready for a change. Though I’m not sure what kind of change I’m looking for either.

 My parents were scammers, no seriously they were. I’m not lying about that. My parents coned so many people through the years and I was the subject of their number one con game. It’s truly a sad story.